Charlie Gard: Treatment can prolong life, Dr. Marc Siegel says
Jul 13 2017
He could be my child, or your child, or any one of us.
"Trump tweeted: 'If we can help little #CharlieGard, as per our friends in the United Kingdom and the Pope, we would be delighted to do so'". "I will remain in London calling for the rights of parents to make decisions for their children's care, and for hospital officials to open their doors and let Charlie's parents seek groundbreaking new treatment for their son". The couple raised approximately €1.2 million ($1.37 million) to take Charlie overseas to receive experimental treatment.
But when medical authorities and parents disagree, the court ruled, "it is well recognized that parents. may lose their objectivity and be willing to 'try anything, ' even if, when viewed objectively, their preferred option is not in a child's best interests".
To the American mind, the notion that Charlie's parents lack the final say on their child's care is repugnant.
The hospital where Charlie has spent his whole life thus far, Greater Ormond Street Hospital, is refusing to treat him further and appealed to the courts. However, parents do not have the absolute right to make decisions for their children in the United Kingdom, and "it is normal for the courts to intervene when parents and doctors disagree on the treatment of a child", ABC Newsreports.
Peter and Emma Smith understand the hardships that infant Charlie Gard and his parents are facing. A US doctor has also proposed treatment for Gard. The life and death struggle facing Charlie's parents could happen to anyone, which is why we are fighting alongside them for their right to determine their son's welfare.
So I find myself ready to argue that these outsiders, the doctors and lawyers, should butt out.
Francis who ruled on the original case in April said he would be delighted to change his mind but added "I want evidence of something that's different".
The case is now back before the courts.
The British hospital on Friday had said it stood by its opinion that Gard's rare form of mitochondrial disease, which causes progressive muscle weakness in key organs such as the heart, was not treatable.
FAMILES came together to demonstrate their support for the family of Charlie Gard, who is desperately ill.