British baby Charlie Gard to be evaluated by USA doctor
Jul 18 2017
Dr. Michio Hirano, a neurologist from Columbia University Medical Center, flew to London for meetings with Charlie's medical team per the judge's order.
The parents have fought in court for permission to take the child to the United States for treatment.
Charlie's parents are fighting for the right to take the 11-month-old to the USA for a therapy trial for his rare genetic condition, overseen by Dr Hirano.
Charlie suffers from mitochondrial depletion syndrome, a rare genetic disease that has left him brain-damaged and unable to breathe unaided.
Michio Hirano, M.D. of the Department of Neurology at Columbia University is now in London England to spend 2 days examining Charlie Gard with doctors at Great Ormond Street Hospital. Hirano recently put the chances of Charlie improving under new experimental treatment at between 10% and 50%.
After receiving the letter, Great Ormond Street asked the High Court for a new hearing on Charlie "in the light of claims concerning possible other treatments".
Chris Gard and Connie Yates have clashed with doctors
His anguished parents, Chris Gard and Connie Yates, are desperate for the trial to go ahead and have raised funds to bring him to the US. The case attracted worldwide attention after Pope Francis and President Donald Trump weighed in. Charlie will die from his illness, his doctors have said.
On Thursday, Hirano told Justice Nicholas Francis that the baby's MRI scan did not necessarily indicate structural damage to the brain.
But judges in several courts - most recently the European Court of Human Rights - told his parents that taking Charlie overseas was not in his best interests.
Rare-disease specialists at Bambino Gesu' are working with other global experts to map out an experimental treatment protocol for Charlie, hospital chief Mariella Enoc said.
"It may be unconventional but this case is full of unconventional aspects", the judge said.
Every ruling has been in favor of Charlie's specialists at Great Ormond Street Hospital.